My older sister, who had recently discovered she had osteoporosis, had a very bad fall, ironically as a result of a violent reaction to a prescription drug, and broke three vertebrae in her back. I was given alendronic acid tablets, one a week after had fall off my bike swerving to miss a coke can someone dropped and fractured my pelvis. Glad Im not alone with these problems,thought i was going mad, hi I had zolondronic infusion no problem ,tablets i cant tolerate so I have hit and missed with them ,I told my consultant and the nurses at the hospital but went unanswered said they would sort it ,five weeks a go I fractured my spine so now Im waiting to see what they going to do Ive been honest with them said i skipped a lot cos I felt sick all the time ,Ive opted for infusion,told them that I did tell them ,but now because Ive fractured my spine Im worried that my bone is bad ,bone density scan and hopefully they will sort infusion out for me .I dont like the tablets,I take vitamin d and c .Im trying to help myself just hope its not too late .wouldnt mind I fell off a ladder about two years ago straight onto my back legs and head fell backwards flat and not a broken bone and I had had a density scan just before the fall. Im sure they will sound familiar. Name of the medicinal product. The second is absolutely & completely familiar. I am diary intolerant. Your doctor will put into consideration the lifestyle changes youve made. She suggested maybe I stop taking the AS but I already had. Please talk to your doctor about this. I was prescribed Alendronic acid because I had been diagnosed with osteopenia back in 2004. There has to be a better way. So if u are on adcal or calcium as well check out it isnt that causing any side effects. Bisphosphonates can strengthen the bones and slow down further bone damage. The doctor put me on ADCAL D3 and alendronic. Fast forward to 2019 stared getting pains from my knees traveled throughout my body into my head thought im going to die. HI all I fractured my wrist in October had a dxa scan and was told I had osteoporosis. I am not hoi going to take anymore Alendronic acid tablets. Hello Barbara Its now Friday and still feeling joint pain all over my back, its lessened but it seems to have moved from my right to left side? This is just too weird. However, it usually takes 6-12 months of ongoing medication to get its full benefit. I chose the infusions and, after two infusions, the Pagets was seen to be in remission. 33% of reviewers reported a positive experience, while 47% reported a negative experience. Oral alendronate 5 or 10 mg/day produces sustained increases in bone mineral density (BMD) in postmenopausal women with or without osteoporosis, in men with primary osteoporosis and in both . I stopped taking these tablets after 3 weeks due to pain in my legs and still have it sfter 3 weeks and hoping it will come out of my body soon. Hi Ive had AA and it made me feel terrible! Eventually, I Started Pilates and regular walking. When i DID start researching, after being on these meds for about a year I decided the risk just wasnt worth the POSSIBLE gain and stopped taking it. Itching in my left shoulder/arm, have gained weight and my mood has changed. Firstly, the potential gastric problems, secondly osteonecrosis of the jaw, and thirdly the suggestion that the quality of the bone created by the drug is not as good as normal bone. Alendronic acid is a type of medicine called a bisphosphonate. In April 2010 I went back to my gym routine, and within a few weeks the second jerking episode occurred. 4 days after my 6th dose, I woke up in the night with right hip pain. Alendronic acid may put your pregnancy at risk. I feel much better and fitter than before. You must take your dose on the same day each week. my Dr. told me she did not want me to take the Alendronic Acid because it would loosen my teeth. It may put you at risk of jaw bone damage. Lately, i have been feeling quite unwell, and after having had all sorts of health checks I have now come to the conclusion that my strange symptoms might be due to Alendronic acid. Pharmaceutical form. What are we paying the doctors for? Pharmaceutical drugs are just about making money and not curing people. I succumbed.About 6 weeks of taking it, I developed severe right hip and femur pain and jaw pain. If I apply pressure to my temples, my headache lessens. For a once health, fit woman shes a frail person now who cant walk and has bladder/stomach problems. She is 86. She is very upset as to how this medication has impacted her. This was a total surprise to me. Not far into the walk (about 20 mins. I was in a bad way. It is relevant at this point to say that my sister lives in Australia which has different prescribing criteria. My recent dexa scan showed a deterioration in bone loss in the last three years so much so that I now have osteoporosis in my hip. who told me it could be one of many things. I was intrigued as my doctor had said specifically not to! I am a naturally upbeat person, but on Wednesdays when I take this drug my body feels so different, I dont like it. However, it is not known to cause cancer or increase in blood pressure. On the third dose I took the tablet with a glass of water as usual and as it was 6.30am I decided to take the lurcher I was looking after for a longish walk (as you cant sit down once you had taken the tablet). Researching I came across Dr Rex Newnham, his story is very interesting, look him up he has written several books re osteoporosis/arthritis, treating them naturally with borax/boron. We spoke to the GP & asked if she could come off of Alendronic ,so she did, but now she is having problems with her arms, like a muscle ache. Stopped AA & CAL3D immediately!! Im 62, and fit until I came tumbling of my bicycle 2years ago and damaged my lumbar spine and muscles. I wont be taking it as I feel I may be able to find a natural alternative. Nothing to eat or drink for at least half an hour afterwards, Remain standing, not lying down Absolutely . I went back to my GP to inform him that I couldnt take them and he readily gave me another prescription for Risedronate 35mg one a week which I am now frightened to take because the possible side effects listed are exactly the same as the AA. I am posting this to try and help other , from being in the same situation that I have been in for last 5 months . I wish everybody all the very best and thank you for your feedback. General Warnings. It was becoming clear to me at this point that activity brought on my symptoms, and at that time it was extreme activity a session at the gym, a long bike ride, a strenuous walk. I guess my mouth has changed after a long time and it has not fitted properly for a while. I was told that it was very uncommon what happened to me, and it was my choice to take it again next week or not. Clinical particulars. june 2022. Im 62. This is me! Ive just been prescribed AA but having read all the posts on this site have decided not to start taking it. Six hours later, left jaw joint tightness, nerves in teeth/jaw became sensitive (lasted a day), runny stools, dry mouth, calf cramps (at night). I was prescribed Alendronic Acid 70 mg by my GP a couple of months go due to fracturing my humorous after I tripped me fell. If prostate cancer spreads to the bones, the cancer can damage them and cause pain. Have other peoples side effects, particularly bone and muscle pain gone away after discontinuing this drug. The oral bisphosphonates alendronic acid and risedronate sodium are considered as first-line options for most patients with postmenopausal osteoporosis due to their broad spectrum of anti-fracture efficacy. I have stop taking the drug and will see my GP this week to see what he recomends but after reading so many stories after taking this drug i am reluctant to conti ue taking it specially as i am taking other medications for high blood pressure, tyroid, high pressure of the eyes, high colesterol.etc. I dont know if these problems have been caused by the AA, but Im now thinking that I should stop taking it and see if my symptoms resolve. I have also been taking Adcal tablets for years. I also read from what seems like reliable sources that oesophageal cancer rates go up by 40% and also causes atrial fibrillation in significant numbers . jerky muscles. Hi. l feel I am not listened to andn being my age, Im past bothering about. I have been taking them for about 5 weeks. Since taking it I have a painful jaw,dry mouth and severe constipation, bloated stomach and a general,feeling of being unwell I spoke to my GP a few weeks ago about my painful jaw and he told me this was quite common and to carry on taking it but. I have taken 2 in total. Fast forward to 2009. Hospital Dec 2007 Spine-2.9 Hip-1.2. In particular, the men we talked to felt strongly that there is still insufficient information and awareness about the fact that osteoporosis affects men. I just want to feel better. I was diagnosed with Preliminary Billiary Cholongistis (PBC) in 2021 and am now informed I have osteopenia (May 2022); informed today that a prescription has been left at my chemist for Alendronic Acid to be taken once a week. I have had GCA for ten years now and as the result of the last of three relapses agreed to take 3mg of predisolone for the foreseeable future. In my diary I have written that I felt lightheaded, as if I wasnt getting enough oxygen, and that my arms and head were fizzing. When I showed this to my GP, he said that is not correct and the book was wrong. User Reviews for Zoledronic acid to treat Osteoporosis. I should have been warned of this side affect. I had settled on a very low dose of Seroxat, enough to keep withdrawal at bay but not enough to have a therapeutic effect, because I didnt need one. The side effects are bone pain, joint pain and bruising, numbness in the face and lips. I also ate one energice bar. Hello I am 66 and like many of you am hating taking this drug, I had breast cancer 4 years ago,so am still taking Anastrosil as it was Hormone related,which in turn apparantly helped causing bone density loss, so ws then diagnosed with osteopenia Took one tablet within 24hrs experienced labour pains & felt like Id been kicked by a horse in the back continued for 4 days, gradually wore off and I refused to take another Alendronic pill again. ALN has a half-life of about 10 years in humans. Started alendronic acid Jul 2014 for three years. I would like to take an alternative to alendronic acid wuth some exercises for the spine. amazonamazon The side effects are horrific. Like a lot of people I was researching AA70 when I came across this group. Im just another person looking for help with my bones, having been told by my doctor that there is no alternative to Alendronic Acid. I am now using a Naturopathic Bone Protocol supplentation for building bones. You uesly get shake from over active thyroid, I know because that what I have, I have been put on alendronic, I havent taken them yet, its very frigthening, not sure what to do, Im 63 and have gone to the gym most ofy life, I dont want to there guinea pig,. Send Link. Hi,all these comments are really helping me to decide not to take anymore Alendronic Acid,I had my Dexa scan September 2017 and was diognosed with Osteoporosis and prescribed AA and Cal D3. Does anyone know if theres a link between the 2 drugs or if theres a suitable alternative? My mother is 83 and has been on this drug for over twenty years with only one bone scan. This led me to think I was in Seroxat withdrawal; so convinced, in fact, I was of this that I asked my doctor to contact GSK to see if they had changed the formulation in some way, as I had made no change to my dose. Im very concerned, like you & so many others, about the side effects of AA which I have just started today! Steroids such asprednisoloneordexamethasone. I will not be taking another one! I am going down the route of continuing my swimming with a healthy diet some weight bearing Zumba step exercises. Is it possible to just stop taking the tablets? It is a condition when you have fragile bones, making you prone to bone fractures or breaks from daily activities such as walking or standing. Hi, my story is very similar but I only found out today that Alendronic Acid has caused my dental problems. With the agreement of my GP I have now stopped taking the tablets. I wonder if it might be something that could help you Ive attached the link to the video below. If youre unsure of your tap water, you can boil it for 1-3 minutes and cool it down before drinking. Whoa, I said, I want to do this with diet and exercise. 74, fractured hip. I got a book on osteoporosis from the library and it explained against taking alendronic acid and any other medication that contain biphosphates. Yes my muscles ache and my arthritis in joints have worsened constant tummy upsets I put down to too much gluten! If I could try these first what would people recommend and . But, remember that without medications, you have to supply your body with enough nutrients and exercise to support and strengthen bone growth. Its essential to take your dose while your body is upright. She is having pain in her legs, hips and groin. There is a phrase called the patient financial profile which is the profit made from an illness or disease or condition without the patient either getting cured or dying. I have gone downhill and increased weight. Twin Research Aug 2005 Spine -2.9 Hip -1.3. But its come to my attention that long term , Alendronic acid (108) is an aminobiphosphonate used to counter postmenopausal osteoporosis, and acts by inhibiting the activity of osteoclasts, bone cells that are involved in the resorption of bone. The first indication I had that something was amiss was in September 2009 I took three anti-sickness pills and had some very strange reactions. I do wish you the very best I had a complete hysterectomy 24 years ago but could not tolerate HRT therefore was susceptible to osteoporosis but I had slipped through the net according to my doctor and only got a dexa scan in August 2017. Ive not been offered another dexascan in four years but if this swelling goes down my GP can decide what he wants to do about treatment, if any. The last two weeks I have felt terribly sick, not eaten much had terrible bloated stomach, one Sunday I felt so ill I had to do a 111 saw a medical person and was given a thorough test being told everthing was ok, I had put it all down to my gallbladder which it wasnt. Our Story; Links to Network; News; Team; Services; Join the Team; I was diagnosed with osteoporosis two weeks ago, so I just took one Sunday. This full head pain is extremely bad. Anything more and pressure builds in my head, I feel lightheaded, my ears ring and my muscles jerk happily away by themselves. Thank all of you for your posts. Hi everyone.I am new to this forum.I started taking Alendronic acid for the first time yesterday.I have had a bone density scan which shows i have oesteoporosis.I am 59 years old,considered myself quite fit until last June,I have read the side effects of these tablets and what other people have put about them.I am quite scared about taking anymore.I felt fine yesterday after taking mu first . Two or three times a week. I have an appointment at The Royal Dental Practice, Cromwell Road, Dorchster to have two back teeth removed. Armed with more natural solutions which I have been taking anyway but paying more attention now. I compared it with strontium ranelate, which was the drug my sister was taking, and the strontium appeared to have better results. where do I go from here, the last thing I want is dentures !! The hospital talking about infusions once a year but still waiting for a appointment. The my neck was hurting. She doesnt have osteoporosis but they just put her on these. Do not take this drug if you have mild to severe kidney problems. http://www.ehealthme.com/cs/osteoporosis/drug+intolerance, http://www.ehealthme.com/cs/osteopenia/drug+intolerance, http://www.ehealthme.com/ds/fosamax/drug+intolerance. . Also, have you researched iodine? But, theres not enough evidence on this claim. I have no side effects whatsoever and did not have a problem starting them as my cancer care has been excellent. Anyway, I started to take them three weeks ago and I seem to have been fortunate in that I have had very few side effects but, after reading all these reviews, Im not sure I will carry on as Im fit and healthy with no pain. I have been put on prednisone and even though my bones are ok I have been prescribed AA as prednisone destroys bones. Should there be a next time I will follow my own advice as I believe we all know our own bodies to a degree of course & I will follow my gut instinct!!! I will not take the poison again. Im going to stop taking Alendronic acid. Alendronic Acid is prescribe to counteract the effects of Entzalutamide, which can thin the bones. Dentist now tells me my teeth are not strong enough to hold a bridge again. I am 62. Brand names: Reclast, Zometa, Aclasta. Im not going to take another one and just hope these pains gradually wear off. I had heard of necrosis in the bones before and she had all the symptoms. Alendronate works by slowing down the cells that break . 4. The NHS Dentist has ben very negative and created time consuming visits which are difficult for me to arrange because I have decreasing mobility because of MS. No one my GP or the dentist recommended by my GP have given me no warning about the serious side effects of having dental extractions while taking Aldronic Acid. Can you give me the name of this book, I too am struggling with whether to go down the road of alendronic acid. Was taken into hospital and because I was taken alendronic they discharged me with 4 Tramadol pain was excruciating..Then I started knocking on doors ring any doctor who would listen no one listen. . they can have the opposite effect ! How Alendronic Acid Destroyed My Life. Frequently missing a dose may lessen the drugs potency. However for the past couple of months the left lower side of my face has been continuously swollen and my family have finally noticed. I thought that my story was a Seroxat story. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Subscribe to newsletter Then one day my body turned to chaos. 2. Then, they will assess if youll have to continue taking it or take a break from it by stopping the medication completely. I thought, as I was 53 and just into the menopause, it would be sensible to have my bones scanned and was shocked to be told I too have osteoporosis in the spine. I just started my first pill of fosamax 70 yesterday. Went to ER did EKG and blood work. take personal responsibility for themselves. Food, mineral water, and other beverages may interrupt your body from absorbing the medicine. This medicine is available as a generic drug in oral pill or solution form and under brand names like Fosamax (oral tablet) and Binosto (oral effervescent medication). Also does anyone know what element of AA gives you the aches and pains so that I know if it will be safer for me to take the Risedronate please? This can help to prevent broken bones and reduce the need for radiotherapy - a treatment . Take ALENDRONIC ACID as prescribed. I had been doing yoga for twenty years. My whole body is sore. For oral liquid medicine, use the dosing syringe to measure one unit (70 mg in 100 ml) of oral solution and take it once a week. After reading the comments I will not be taking it again. Took my 1st AA 2 days ago, since then Ive had constant stomachache, feel exhausted, and tired, and shivering. Its been a nightmare for four weeks weeks. 1800+ Cities. Hello Claire, I am 60 years old and very modern and active with and without my grandchildren. As you age, you will notice changes in your body, such as grayed hair, wrinkles, vision problems, and hearing loss. Thank you. I had had a two year bone scan and been told that my bone density had increased, so as far as I was concerned, the drug was working and all was well in that particular area. I was still a little sore, but improving. I have always looked after my teeth, having paid for a very expensive bridge in 2010 to fill a gap. Where do you live Jane hope you dont mind me asking. When I initially had a bone scan they said Id have another one after three years, Ive never had another one. Take one tablet of alendronic acid 70 mg weekly if youre prescribed brands like Fosamax and Fosavance. I left the surgery with a diagnosis of being on the edge of a clinical depression and a prescription for Seroxat. But I Need to get an updated DEXA to see how things have progressed. The doctors do say though that we should let them know if we have any. There is nothing I can do to stop the shoulder pain, and lower jaw pain, or the chills I get. For more about osteoporosis and medication, see Fragile Doctors: Iatroporosis. Until recently I only took my Thyroid med. My ears was hurting. I have now been off Alendronic acid for two weeks or so, and at the moment im not noticing very much improvement. It is usually injected by a healthcare provider in a doctor's office, hospital, or clinic. Typically, doctors recommend taking osteoporosis medication for 3-5 years. Extra C/D also. There are 8,218 reported reactions, bear in mind many dont report the side effects to the Yellow Card Scheme. I am aldo taking Calcio with vitamin-D Stopping and seeing if the symptoms resolve for most drugs is the best way to prove a link some problems with some drugs may take time more time than you expect but will resolve but some may also be permanent. I have been reluctant to start this course of medication due to the possible side effects and negative responses from the enquiries I have made regarding the drug. My Seroxat story is classic and a repeat of so many other peoples. Peripheral neuropathy in the hands and fingers. Ive not taken many of the Adcal, and havent yet taken any Alendronic Acid, and to be honest Im now thinking about not talking it at all, as the possible side effects are really worrying me. My GP suggested that I take another brand but I cannot risk it. https://info.mhra.gov.uk/drug-analysis-profiles/dap.html?drug=./UK_EXTERNAL/NONCOMBINED/UK_NON_000837661002.zip&agency=MHRA No way am I taking another drug, and particularly not this one. These strange sensations coursing through my body continued for a couple of weeks, but I carried on into December going to the gym, singing in two choirs, building my new life coaching business and generally preparing for Christmas. My Mum had taken Alendronic for 10yrs after breaking her hip. Hi Everyone 20 mile house bernadette 0533 929 10 81; best time to visit kodiak island info@reklamcnr.com; grateful dead from the vault box set caner@reklamcnr.com; athens high school basketball roster reklamcnr20@gmail.com I read its the same Acid in cleaning products! However, the pressure was on. And of course I couldnt exercise, so taking the drug seemed suddenly very important. I have osteopenia aged 58 and my sister has osteoporosis aged 65, she was prescribed Alendronic Acid with similar side effects. I ran on a treadmill for twenty minutes and I could push my weight in kilos on the leg press. She has stopped the tablets. Jan. Avoid taking it if you have esophageal or throat conditions. Please tell your doctor if youre taking: Your doctor might recommend you take brands of alendronic acid such as Fosavance and Bentexo along with vitamin D3 (calciferol). My body jerked violently and out of control for hours. Hey Ive been diagnosed with polymialgia rheumatica too i was prescribed predisolone vit d evacol and now AA Im not having any side effects from it yet but reading all of these comments Im worrying about wether I should take the alendronic acid Ive only taken two up to now but have had no problem with it yet It scares you a bit, Hi I have just been precribed alendronic acid I have not taken it yet as I have had a bad cold. The side effect possibilities worry me. The next day I felt very ill. When I got to see the next doctor in September 2012, I thought I was still telling a Seroxat story. To summarise, my probs appear to be muscular. Hi everyone I was put on alendronic about 25years ago after scan, had bad time painful joins,palpitations,pains in my chest was that bad they thought I was having heart attack,doctors dismiss as stress. Any advice would be greatly appreciated. Two hours later, I finally could eat, and drink. You can, however, lie down after youve eaten your first meal of the day. Instead of the exercising I need and want to be doing, my muscles are weakening, my joints ache, my tendons burn and my bones are probably crumbling away. I felt pressurised to take it saying that I would suffer as I get older if I didnt take it but I am now wondering if it really does any good. I do wonder if all of this is as a result of being on Seroxat for so long. 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